He tried to go back to school today for the first time in more than a week and he got 3 bleeds so he’s back home. I am losing it. He’s frustrated as hell and none of us know what to do.
But there is a plan. We’re going to take him to Vanderbilt for another operation, hopefully his last one. This will hopefully get his current issues well under control. His bleeding disorder shouldn’t affect his life, not like this. If we can just get the current bleeding sites fixed, he’ll be fine.
Definitely keep all the prayers and wishes coming. And while you’re thinking of us, don’t forget St Jude. Without them, we’d be lost. His nurse case manager and the education coordinators are on the ball! All the doctors, nurses, social workers and staff at St Jude are amazing!
