He tried to go back to school today for the first time in more than a week and he got 3 bleeds so he’s back home. I am losing it. He’s frustrated as hell and none of us know what to do.

But there is a plan. We’re going to take him to Vanderbilt for another operation, hopefully his last one. This will hopefully get his current issues well under control. His bleeding disorder shouldn’t affect his life, not like this. If we can just get the current bleeding sites fixed, he’ll be fine.

Definitely keep all the prayers and wishes coming. And while you’re thinking of us, don’t forget St Jude. Without them, we’d be lost. His nurse case manager and the education coordinators are on the ball! All the doctors, nurses, social workers and staff at St Jude are amazing!

Took these last week on campus, didn’t have time to share them, but here’s some new ones, including the Chili’s building. So keep buying those chilis!

At least the waiting rooms have more to look at!

I’m back at the ER at Le Bonheur with Austin. Third time this month.
If I have learned anything it’s this: pediatric ERs are an amazing equalizer. Every other parent here feels just like I do - desperate and helpless.

I just couldn’t help myself this weekend. I recruited Small Fry and a friend to help me make a graveyard cake. Keep in mind that this was taken with my iPhone, but it was a yummy graveyard cake, complete with chocolate pudding/crushed Oreos for the mud and dirt and whip cream ghosts!

This is me, busier than a one-armed paperhanger.  I’m a little busier than usual these days.  So if the blog suffers, deal with it.  There.  Told you.  

Taken from Memphis Steve

[1] What’s your name spelled backwards?
Deimhcs Sirhc

[2] Have you ever seen your best friend cry?
Yes.

[3] What are you listening to right now?
General type moaning (I’m at work)

[4] Last thing you ate?
Fruit Loops.

[5] Did you get any compliments today?
Not yet. But I look like hell so if I do get any, they’ll be more of the “Wow, it’s so great that you’re not dead yet.” kind of compliment.

[6] Have you ever gone to court?
Yeah, and I still hate the City of Southaven, thank you.

[7] What’s the seventh text message in your inbox say?
“Did you have a chance to look at those maps?”

[8] Are you friends with your neighbors?
Some of them, yes.

[9] Favorite colors?
Purple and more purple.

[10] What states have you lived in?
Texas, what other states are there? Oh, I get it. Let’s see, Texas (did I already say that?), Illinois, Virginia, Alabama, Florida and South Carolina. I think that’s it. I can’t remember all the stuff from my early military brat days.

Read the rest of this entry »

Austin is having a tough time with a huge bleed today, so we’re up at Le Bonheur right now. So forgive me if I’m not sharing any fabulous funnies or news today or tomorrow.

My contribution to fan art. Here’s a Sam Merlotte wallpaper, 1440×900 (click on the image to view/download).

New Discovery Christian Church is kindly sponsoring a blood drive for my son, Austin, at Hernando Middle School on October 1st at 6pm. We’re organizing this drive to help Austin (a hemophiliac), and others like him by donating blood and raising awareness. Donating blood not only helps Austin by providing blood for his transfusions, but also helps provide factor (plasma derived) for the infusions Austin can’t live without. Please comment here, or email me at cschmied@gmail.com if you have any questions. You can also visit the church’s site at http://newdiscoverychurch.com/special.html to get more info. 

Thanks, 
Chris